Rare Diseases

Dictionaries/Glossaries

1.	Terms and Definitions Office of Rare Diseases http://ord.aspensys.com/asp/resources/glossary_a-e.asp

Directories

1.	Other Sources of Rare Disease/Orphan Product Infor Food and Drug Administration http://www.fda.gov/orphan/rdid/




2.	Genetic and Rare Diseases Information Center Office of Rare Diseases http://rarediseases.info.nih.gov/html/resources/info_cntr.html

Law and Policy

1.	FDA Fights Rare Diseases: New Help for Patients wi Food and Drug Administration http://www.fda.gov/opacom/factsheets/justthefacts/10orph.html

National Institutes of Health

1.	Rare Diseases Terms Office of Rare Diseases http://ord.aspensys.com/asp/diseases/diseases.asp




2.	PubMed Search National Library of Medicine http://www.ncbi.nlm.nih.gov/entrez/

Organizations

1.	Food and Drug Administration, Office of Orphan Pro http://www.fda.gov/orphan/




2.	Office of Rare Diseases http://rarediseases.info.nih.gov/

Research

1.	About the Human Genome Project National Human Genome Research Institute http://www.genome.gov/page.cfm?pageID=10001772

Treatment

1.	Orphan Products: Hope for People with Rare Disease Food and Drug Administration http://www.fda.gov/fdac/features/2003/603_orphan.html




2.	OOPD Frequently Asked Questions Food and Drug Administration http://www.fda.gov/orphan/faq/index.htm




3.	Gene Therapy for Cancer: Questions and Answers National Cancer Institute http://cis.nci.nih.gov/fact/7_18.htm