Genetic Testing

Children

1.	What Is a Pediatric Geneticist? American Academy of Pediatrics http://www.aap.org/family/WhatisPedGeneticist.pdf

Dictionaries/Glossaries

1.	Talking Glossary of Genetic Terms National Human Genome Research Institute http://www.genome.gov/glossary.cfm

Directories

1.	US Clinic Directory Search Children's Health Care System, Seattle http://www.genetests.org/servlet/access?id=8888891&key=yLoqrsrCVms-M&fcn=y&...




2.	Laboratory Directory-GeneReviews Children's Health Care System, Seattle http://www.genetests.org/servlet/access?id=8888891&key=xW0l31Z2a4hTc&fcn=y&...




3.	Genetic and Rare Diseases Information Center Office of Rare Diseases http://rarediseases.info.nih.gov/html/resources/info_cntr.html




4.	Cancer Genetics Services Directory National Cancer Institute http://www.cancer.gov/search/genetics_services/

Genetics

1.	Genetics Home Reference: Genetic Testing National Library of Medicine http://ghr.nlm.nih.gov/info=genetic_testing

Law and Policy

1.	Genetic Discrimination in Health Insurance National Human Genome Research Institute http://www.genome.gov/page.cfm?pageID=10002328




2.	Regulatory Environment for Genetic Tests Genetics and Public Policy Center http://www.dnapolicy.org/policy/genTests.jhtml




3.	Policy and Legislation Database National Human Genome Research Institute http://www.genome.gov/PolicyEthics/LegDatabase/pubsearch.cfm




4.	Issues in Genetics and Health National Human Genome Research Institute http://www.genome.gov/page.cfm?pageID=10001740




5.	Genetic Information and the Workplace National Human Genome Research Institute http://www.genome.gov/10001732




6.	Ethical, Legal and Social Implications Program National Human Genome Research Institute http://www.genome.gov/page.cfm?pageID=10002329

National Institutes of Health

1.	Genetics FAQ National Human Genome Research Institute http://www.genome.gov/page.cfm?pageID=10001191




2.	Brief Primer on Genetic Testing National Human Genome Research Institute http://www.genome.gov/page.cfm?pageID=10506784




3.	Understanding Gene Testing National Cancer Institute http://nci.nih.gov/cancertopics/understandingcancer/genetesting

Newsletters/Print Publications

1.	Genomics & Health Weekly Update Centers for Disease Control, Office of Genomics and Disease Prevention http://www.cdc.gov/genomics/update/current.htm

Organizations

1.	National Newborn Screening and Genetics Resource C http://genes-r-us.uthscsa.edu/




2.	National Human Genome Research Institute http://www.genome.gov/




3.	March of Dimes Birth Defects Foundation http://www.marchofdimes.com/




4.	GeneTests Children's Health Care System, Seattle http://www.genetests.org/




5.	Centers for Disease Control, Office of Genomics an http://www.cdc.gov/genomics/




6.	National Institute of Child Health and Human Devel http://www.nichd.nih.gov/

Overviews

1.	Introduction to Genetics and Genetic Testing Nemours Foundation http://kidshealth.org/parent/system/medical/genetics.html

Related Issues

1.	Preimplantation Genetic Diagnosis (PGD) Genetics and Public Policy Center http://www.dnapolicy.org/genetics/pgd.jhtml




2.	Genetics Home Reference National Library of Medicine http://ghr.nlm.nih.gov/




3.	Reproductive Genetic Testing Genetics and Public Policy Center http://www.dnapolicy.org/genetics/reproGen.jhtml




4.	Genetic Testing: Weighing Its Benefits and Risks Mayo Foundation for Medical Education and Research http://www.mayoclinic.com/invoke.cfm?id=FL00076




5.	Universe of Genetic Testing American Association for Clinical Chemistry http://www.labtestsonline.org/understanding/features/genetics.html




6.	FDA Clears First of Kind Genetic Lab Test Food and Drug Administration http://www.fda.gov/bbs/topics/news/2004/new01149.html




7.	Ancilliary Services (Paternity or Maternity Testin Children's Health Care System, Seattle http://www.genetests.org/servlet/access?id=8888892&key=fPQocRVt6V2DC&fcn=y&...




8.	Genes and Populations National Institute of General Medical Sciences http://www.nigms.nih.gov/news/science_ed/genepop/

Research

1.	Gene Hunting (Mental Illnesses) National Institute of Mental Health http://www.nimh.nih.gov/publicat/huntgene.cfm




2.	Genetic Mapping National Human Genome Research Institute http://www.genome.gov/page.cfm?pageID=10000715